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Involving patients in quality indicator development - a systematic review
Thomas Kötter1, Friederike Anna Schaefer, Martin Scherer
1Institute for Social Medicine and Epidemiology, University of Lübeck, Lübeck, Germany ; Department of Primary Medical Care, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Patient Preference and Adherence
|April 10, 2013
Summary
Patient involvement in quality indicator (QI) development is scarce, with limited published methods. Further research is needed to improve reporting and explore combined approaches for better healthcare quality.
Area of Science:
- Health Services Research
- Quality Improvement Science
Background:
- Quality indicators (QI) are crucial for measuring and improving healthcare.
- Patient perspectives on quality often differ from providers', yet patient involvement in QI development is limited.
- A methodological standard for patient involvement in QI development is currently lacking.
Purpose of the Study:
- To systematically review existing literature and identify published approaches for involving patients in the development of quality indicators.
- To synthesize current methodologies for patient engagement in QI creation.
Main Methods:
- A systematic review of medical journal articles and gray literature was conducted.
- Searches included major medical databases (Medline, EMBASE, CINAHL), relevant websites, and expert consultations.
- Publications detailing approaches to patient involvement in QI development were screened and analyzed.
Main Results:
- Eleven journal articles and four web-published documents were identified.
- Four primary methods for patient involvement emerged: focus groups, self-administered questionnaires, individual interviews, and participation in consensus panels.
- Patient, patient representative, or family member input was utilized across these methods.
Conclusions:
- Literature describing patient involvement in QI development is scarce, despite the importance of QI in healthcare.
- Both direct and indirect methods of patient involvement are feasible, with combined approaches showing promise.
- Significant further research and improved reporting quality are necessary in this field.
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