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Determining what is in the best interests of a critically ill child
1Swansea University, UK.
Insights
Controversy surrounds end-of-life care pathways for critically ill children. This article reviews the legal "best interests" test to guide decisions when treatment is futile, ensuring ethical considerations for pediatric end-of-life care.
Area of Science:
- Medical Ethics
- Pediatric Critical Care
- Legal Medicine
Background:
- The use of end-of-life care pathways is expanding to critically ill children and infants.
- Concerns exist regarding parental coercion in agreeing to these pathways for their child's best interests.
Purpose of the Study:
- To review the evolution of the legal "best interests" test in cases involving critically ill children.
- To argue for the application of this test in determining the futility of continued treatment and the consideration of end-of-life care pathways.
Main Methods:
- Legal case review of the "best interests" test.
- Analysis of ethical considerations in pediatric end-of-life decision-making.
Main Results:
- The "best interests" test has been developed by courts for cases of seriously ill children.
- This legal framework can inform decisions about futility of care.
Conclusions:
- The "best interests" test should guide decisions on transitioning to end-of-life care pathways for pediatric patients.
- Ethical and legal frameworks are crucial for managing end-of-life decisions in pediatric critical care.
Abstract:
Controversy over the use of end-of-life pathways with terminally ill patients has now extended to their use with critically ill children and babies (Boyd and Murray, 2012). At the centre of the present controversy is the claim that parents feel coerced into agreeing that it is in their child's best interests to be placed on the pathway (Ford Rojas, 2012). In this article, Richard Griffith reviews the development of the best interests test adopted by the courts when dealing with cases of seriously ill children and babies, and argues that the test should inform the decision on when continued care and treatment become futile and the use of an end-of-life care pathway should be considered.
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