The quality of dying: financial, psychological, and ethical dilemmas

The quality of life of terminally ill patients depends on the information base and psychosocial skills of their health care team. Patients have the right to choose to forego medical care, and it is important to learn the who, what, when, and where of informing a patient and supporting their decisions. Planning for care outside the hospital must include psychological support for the patient and family during the initial transition to issues involving the terminal phase of an illness. Although there is a remarkable array of potential care choices--home hospice, hospital-based hospice, and varying nursing home coverage--the access of an individual patient to these may vary widely. The impoverishment of the family, monetarily and physically; the denial of alternatives, even though potentially more cost-effective; and lack of coverage for a significant portion of the patient population can make humane care at the end of life impossible. Physicians have an ethical responsibility to inform themselves about terminal care and to advocate improved coverage at the end of life.