The needs of hospitalized patients with autism spectrum disorders: a parent survey

Area of Science:

• Pediatric Healthcare
• Neurodevelopmental Disorders
• Patient Advocacy

Background:

• Autism spectrum disorders (ASDs) present unique challenges for affected individuals and their families.
• Hospitalization can be a particularly stressful experience for children with ASDs due to sensory sensitivities and communication differences.

Purpose of the Study:

• To survey and identify the specific in-hospital needs of patients diagnosed with autism spectrum disorders (ASDs).
• To gather parent perspectives on the hospital environment and care for children with ASDs.

Main Methods:

• A 21-item survey was administered to parents of children diagnosed with ASDs.
• Parental reports of ASD diagnosis were collected at the time of the survey.
• Survey responses were analyzed and categorized into three distinct areas of need.

Main Results:

• A wide spectrum of ASD-specific needs were identified during hospitalization.
• Key concerns reported by parents included ensuring child safety.
• The importance of recognizing and accommodating individual communication methods was highlighted.

Conclusions:

• Parents report diverse needs for children with ASDs during hospital stays.
• Individualized assessment of communication and sensory needs is crucial for effective inpatient care planning.
• This study underscores the necessity of personalized approaches to support children with ASDs in hospital settings.