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Feeding dysfunction in single ventricle patients with feeding disorder
Garick Hill1, Alan Silverman, Richard Noel
1Department of Pediatrics, Division of Cardiology, Medical College of Wisconsin, Milwaukee, Wis, USA.
Congenital Heart Disease
|May 8, 2013
Summary
Children with single ventricle heart defects and feeding disorders experience more eating resistance and parental distress. Parents may underestimate feeding difficulties, impacting long-term growth.
Area of Science:
- Pediatric Cardiology
- Developmental Pediatrics
- Clinical Nutrition
Background:
- Single ventricle heart defects (SVHD) are complex congenital conditions requiring specialized care.
- Feeding difficulties are common in children with SVHD, potentially impacting growth and development.
- Understanding feeding dysfunction in this population is crucial for effective management.
Purpose of the Study:
- To compare feeding dysfunction and maladaptive mealtime behaviors in children with SVHD and feeding disorders against reference groups.
- To investigate parental stress and mealtime interactions in caregivers of children with SVHD and feeding disorders.
Main Methods:
- Validated questionnaires assessed feeding dysfunction and parental stress in children evaluated at a specialized feeding center.
- Parental responses from SVHD patients were compared to those of non-cardiac children with feeding disorders.
Main Results:
- Children with SVHD showed significantly higher rates of eating resistance (83% vs. 44%) compared to controls.
- Parents of children with SVHD reported greater distress (50% vs. 21%) and perceived their child as more difficult (63% vs. 31%).
- Parents of SVHD children exhibited more defensive responding, potentially underestimating feeding challenges.
Conclusions:
- Children with SVHD and feeding disorders exhibit distinct feeding challenges and parental distress.
- Defensive responding by parents may mask the severity of feeding issues.
- Addressing feeding dysfunction is vital for mitigating long-term growth and feeding problems in SVHD patients.
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