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Dermatological quality of life instruments in children
1Department of Dermatology and Venereology National Medical University, Kiev, Ukraine. chernyshovpavel@ukr.net
Insights
Assessing health-related quality of life (HRQoL) in children with skin conditions is crucial. The Children
Area of Science:
- Pediatric Dermatology
- Health-Related Quality of Life (HRQoL) Measurement
Background:
- Growing interest in HRQoL for pediatric dermatologic conditions.
- Existing HRQoL instruments for adults are often unsuitable for children.
- Children aged 4-5 can self-assess HRQoL; proxy ratings are used for younger children.
Purpose of the Study:
- To review methods for measuring HRQoL in pediatric dermatology.
- To highlight the utility of HRQoL assessment in understanding disease impact and treatment efficacy.
- To identify gaps in current HRQoL assessment tools for pediatric skin conditions.
Main Methods:
- Review of generic, dermatology-specific, and disease-specific HRQoL instruments.
- Discussion of age-appropriate assessment methods, including illustrations and proxy ratings.
- Identification of the Children's Dermatology Life Quality Index (CDLQI) as a frequently used tool.
Main Results:
- The CDLQI is the most common dermatology-specific HRQoL instrument for children.
- A lack of validated proxy instruments for children under 4 exists.
- Most disease-specific instruments are for atopic dermatitis; many skin diseases lack specific HRQoL tools.
Conclusions:
- HRQoL assessment in pediatric dermatology provides valuable insights into disease impact and treatment effectiveness.
- Standardized HRQoL measures facilitate comparisons across different settings and age groups.
- Validated, disease-specific, and proxy instruments are needed to improve comprehensive HRQoL assessment in pediatric dermatology.
Abstract:
The interest to the health related quality of life (HRQoL) in children with dermatologic conditions is growing and it was studied in children with different dermatologic diseases. Generic, dermatology-specific and disease-specific instruments can be used to measure HRQoL in pediatric dermatology. In most cases HRQoL questionnaires to be used in adult population are inappropriate for children. With the help of illustrations and interview forms children are able to assess their HRQoL from the age of 4-5 years. In smaller children proxy ratings can be used. The dermatology-specific instrument Children's Dermatology Life Quality Index (CDLQI) is the most frequently used HRQoL instrument for children with different skin conditions. There is lack of validated dermatology-specific HRQoL proxy instrument to be used in children under 4 years and disease-specific instruments for many skin diseases. Most of the disease-specific HRQoL instruments created especially for children with skin diseases are atopic dermatitis-specific. The assessment of HRQoL in pediatric dermatology helps to assess the impact of single skin disease on child's life, to register patients' view on the efficacy of different treatment methods, educational programs and consultations. It makes possible to compare the impact of skin diseases and results of the treatment in children from different age groups on local, regional, national and international levels. It is used by pharmaceutical industry in clinical trials of new drugs and by health service authorities in national standards.
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