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Published on: January 11, 2016
Social outcomes of young adults with cerebral palsy
Dinah S Reddihough1, Benran Jiang, Anna Lanigan
1Developmental Medicine, The Royal Children's Hospital, Melbourne, Australia.
Insights
Young adults with cerebral palsy (CP) face significant functional and social disadvantages compared to peers without CP. This study highlights challenges in self-care, education, employment, and independent living for this population.
Area of Science:
- Neurology
- Developmental Pediatrics
- Rehabilitation Medicine
Background:
- Young adults with cerebral palsy (CP) have limited research on their functional and social outcomes.
- Advances in pediatric care have increased the survival rate of individuals with CP into adulthood to 90%.
Purpose of the Study:
- To investigate the functional abilities and social outcomes of young adults with CP.
- To compare these outcomes with a population-based control group of peers without disability.
Main Methods:
- A cohort of 335 young adults (aged 20-30) with CP was compared to 2,152 individuals without CP.
- Data on motor function, self-care, education, and social outcomes were collected via questionnaires.
Main Results:
- Only 50% of young adults with CP could walk independently, and 35.5% were independent in self-care.
- Compared to controls, the CP group had lower educational attainment (p < .0001), lower employment rates (36.3% vs. 80%), and were more likely to live with parents (80% vs. 21%).
- The study group also reported being more likely to be single and have limited financial resources.
Conclusions:
- Young adults with CP experience significant functional and social disadvantages compared to their non-disabled peers.
- While self-care dependence, intellectual disability, and communication impairments are contributing factors, they do not solely explain these disparities.
Background:
Functional abilities and social outcomes of young adults with cerebral palsy (CP) are relatively under-researched. Improvements in paediatric care have extended the expectation of achieving adulthood to 90%.
Method:
Young adults aged 20-30 years with CP (n = 335) were compared to a population-based control group (n = 2,152) of the same age. Motor function, self-care abilities, educational level, and social outcomes were determined by questionnaire.
Results:
Half the study group walked independently, but only 35.5% were independent in self-care. In comparison to their peers without disability, the study group's highest educational level was lower (p < .0001), as were rates of employment (36.3% compared with 80%), they were more likely to be living with parents (80% compared with 21%), to be single, and to have limited financial resources.
Conclusion:
Young adults with CP are functionally and socially disadvantaged in contrast with their peers without disability. Self-care dependence, intellectual disability, and communication impairments contribute to these outcomes but are not solely responsible.
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