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Published on: January 7, 2020

Parental experiences of a developmentally focused care program for infants and children during prolonged

Stephanie So1, Alaine Rogers2, Catherine Patterson2

  • 1Hospital for Sick Children, Toronto, Canada stephanie.so@sickkids.ca.

Journal of Child Health Care : for Professionals Working with Children in the Hospital and Community
|June 1, 2013
PubMed

Insights

Parents in a prolonged hospitalization study valued respectful care and child development programs. The Beanstalk Program (BP) empowered parents, shifting focus from medical overwhelm to confidence in caring for their child.

Area of Science:

  • Pediatric Healthcare
  • Family-Centered Care
  • Child Development

Background:

  • Prolonged pediatric hospitalizations present unique challenges for families.
  • Parental experiences and perceptions of care significantly impact family well-being.
  • Developmentally focused programs are crucial in acute care settings.

Purpose of the Study:

  • To investigate parental experiences with care during prolonged pediatric hospitalizations.
  • To evaluate the Beanstalk Program (BP), a developmental care initiative.
  • To understand how developmental focus influences parental confidence and empowerment.

Main Methods:

  • Quantitative survey using the Measures of Processes of Care (MPOC-20) with 20 parents.
  • Qualitative semi-structured interviews with 11 parents.
  • Exploration of parental perceptions of healthcare provider behaviors and the BP.

Main Results:

  • Parents rated Respectful and Supportive Care highest and Providing General Information lowest.
  • Key themes included striving for normalcy, valuing developmental focus, and the impact of education.
  • Developmentally focused education empowered parents, reducing feelings of overwhelm.

Conclusions:

  • The Beanstalk Program (BP) positively impacts parental experiences during child hospitalization.
  • Prioritizing child development is essential for hospitalized infants and young children.
  • Empowering parents through education enhances their confidence in managing their child's care and transition home.

Keywords:
Childhood illnessdevelopmental carefamily-centred careparents

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