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Transition to adult care for young people with long-term conditions
1School of Nusrsing and Midwifery, Trinity College, Dublin, Ireland.
Insights
Healthcare transition for young people with cystic fibrosis (CF) and insulin-dependent diabetes mellitus (IDDM) in Ireland varies significantly. Professionals identified a need for improved, streamlined national strategies for better patient care.
Area of Science:
- Pediatric Healthcare
- Transition Medicine
- Chronic Disease Management
Background:
- Young individuals with long-term conditions require structured healthcare transitions.
- Managing the shift from pediatric to adult care presents unique challenges.
- Effective transition protocols are crucial for continuity of care.
Purpose of the Study:
- To investigate current transition management practices for pediatric patients with cystic fibrosis (CF) and insulin-dependent diabetes mellitus (IDDM) in Ireland.
- To identify variations and challenges in the child-to-adult healthcare transition process.
- To gather insights from healthcare professionals on improving transition services.
Main Methods:
- A national postal survey was distributed to 132 physicians and nurse specialists.
- An adapted questionnaire with closed and open-ended questions was utilized.
- Quantitative data were analyzed using SPSS, and qualitative data underwent content analysis.
Main Results:
- Transition management protocols varied widely based on service, location, and available resources.
- Age was the most frequent criterion for initiating patient transition across services.
- Healthcare professionals reported a need for enhanced transition management and a more streamlined national approach.
Conclusions:
- Current transition practices for CF and IDDM patients in Ireland are inconsistent.
- A cohesive national strategy is essential for a streamlined transition between pediatric and adult healthcare services.
- Improvements are needed to ensure optimal care continuity for young adults with chronic conditions.
Abstract:
This study aimed to clarify how the transition from child to adult healthcare is managed in young people with two long-term conditions in the Republic of Ireland.A postal survey using an adapted questionnaire (Flume et al, 2001) with closed and open questions was sent to all physicians and nurse specialists (n=132) caring for children with cystic fibrosis (CF) and insulin dependent diabetes mellitus (IDDM)in the Republic of Ireland. Data was analysed using SPSS 16.0 for Windows and the open-ended qualitative questions were analysed using content analysis. Results showed that transition management varied depending on the service, location and resources available. Comparisons were made between CF and IDDM data. Age was found to be the criterion most commonly used to determine when to transition in all services. Healthcare professionals said transition management needed to be improved. Some services managed transition following recommended guidelines.However, the management of transition nationally needs to be more streamlined.This includes a devised cohesive strategy between adult and young people's services.
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