Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Concept Videos

Ethics in Research01:56

Ethics in Research

Today, scientists agree that good research is ethical in nature and is guided by a basic respect for human dignity and safety. However, this has not always been the case. Modern researchers must demonstrate that the research they perform is ethically sound.
Study Designs in Epidemiology01:20

Study Designs in Epidemiology

Epidemiological study designs are fundamental tools for investigating the distribution, determinants, and control of health conditions in populations. They help researchers understand the relationships between exposures and outcomes, and they broadly fall into two categories: "observational" and "experimental" studies.
Observational studies are those where the researcher does not intervene but rather observes natural variations. They include cross-sectional, cohort, and case-control studies.
Data Collection by Experiments01:13

Data Collection by Experiments

Data collection is a systematic method of obtaining, observing, measuring, and analyzing accurate information. An experimental study is a standard method of data collection that involves the manipulation of the samples by applying some form of treatment prior to data collection. It refers to manipulating one variable to determine its changes on another variable. The sample subjected to treatment is known as “experimental units.”
An example of the experimental method is a public clinical trial...
Genome-wide Association Studies-GWAS01:11

Genome-wide Association Studies-GWAS

Genome-wide association studies or GWAS are used to identify whether common SNPs are associated with certain diseases. Suppose specific SNPs are more frequently observed in individuals with a particular disease than those without the disease. In that case, those SNPs are said to be associated with the disease. Chi-square analysis is performed to check the probability of the allele likely to be associated with the disease.
GWAS does not require the identification of the target gene involved in...
Data Collection I01:30

Data Collection I

Data collection gathers information needed to make accurate judgments about a patient's present condition. During a health history interview, subjective data is collected from the patient, their caregivers, or family members, and objective data is collected through observations and physical assessment. Patients are the primary source of subjective data. Thus information gathered from patients through interviews, observations, and physical examination is primary data. Secondary sources of data...
Data Collection by Observations01:08

Data Collection by Observations

Data collection refers to a systematic way of obtaining, observing, measuring, and analyzing accurate information. Observational studies are one of the most widely used methods of data collection. It involves collecting data by observing the behavior and physical characteristics of a sample without making any modifications to the sample.
An astronomer viewing the motion and brightness of stars in the sky and recording the data is an example of observational data collection. A botanist recording...

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Imagining Genomics and Population Health in 2050: Anticipating Future Research, Policy, and Governance Needs.

Public health genomics·2026
Same author

Correction: Internalising and externalising behaviour in siblings of children born preterm Preterm birth: Internalising and externalising behaviour of siblings.

PLOS mental health·2026
Same author

Internalising and externalising behaviour in siblings of children born preterm Preterm birth: Internalising and externalising behaviour of siblings.

PLOS mental health·2026
Same author

Paths of legal recognition of genetic counselors in Canada: A framework for action.

Journal of genetic counseling·2026
Same author

Prenatal therapies: a Points to Consider framework for responsible innovation.

BMC medical genomics·2025
Same author

A DNA methylation-based algorithm for diagnosing rheumatoid arthritis.

Arthritis research & therapy·2025

Related Experiment Video

Updated: May 10, 2026

Navigating MARRVEL, a Web-Based Tool that Integrates Human Genomics and Model Organism Genetics Information
09:37

Navigating MARRVEL, a Web-Based Tool that Integrates Human Genomics and Model Organism Genetics Information

Published on: August 15, 2019

Data sharing in large research consortia: experiences and recommendations from ENGAGE.

Isabelle Budin-Ljøsne, Julia Isaeva, Bartha Maria Knoppers

    European Journal of Human Genetics : EJHG
    |June 20, 2013
    PubMed
    Summary

    Sharing research data is crucial for scientific advancement. A survey in the European Network for Genetic and Genomic Epidemiology (ENGAGE) found data sharing worked well but identified hurdles, especially for international collaborations.

    More Related Videos

    Global and Current Research Trends of Single-Cell Sequencing in Cancer: A Bibliometric and Visualization Study
    07:50

    Global and Current Research Trends of Single-Cell Sequencing in Cancer: A Bibliometric and Visualization Study

    Published on: April 18, 2025

    Related Experiment Videos

    Last Updated: May 10, 2026

    Navigating MARRVEL, a Web-Based Tool that Integrates Human Genomics and Model Organism Genetics Information
    09:37

    Navigating MARRVEL, a Web-Based Tool that Integrates Human Genomics and Model Organism Genetics Information

    Published on: August 15, 2019

    Global and Current Research Trends of Single-Cell Sequencing in Cancer: A Bibliometric and Visualization Study
    07:50

    Global and Current Research Trends of Single-Cell Sequencing in Cancer: A Bibliometric and Visualization Study

    Published on: April 18, 2025

    Area of Science:

    • Genetics
    • Epidemiology
    • Bioinformatics

    Background:

    • Data sharing is vital for modern research and mandated by funders.
    • International research consortia face unique data sharing challenges.
    • Factors influencing data sharing within and between consortia are not well-documented.

    Purpose of the Study:

    • To investigate factors hindering and facilitating data sharing within the European Network for Genetic and Genomic Epidemiology (ENGAGE).
    • To identify specific challenges encountered in intra-consortia, inter-consortia, and broader scientific community data sharing.
    • To gather lessons learned and recommendations for improving future data sharing practices.

    Main Methods:

    • A survey was conducted among participating institutions within the ENGAGE consortium.
    • The questionnaire collected information on experiences, hurdles, concerns, and lessons learned regarding data sharing.
    • Data analysis focused on identifying common challenges and successful aspects of data sharing.

    Main Results:

    • Data sharing within ENGAGE generally functioned well.
    • Specific areas posing frequent hurdles to data sharing were identified.
    • International data sharing beyond the consortium presented additional, distinct challenges.

    Conclusions:

    • While data sharing within ENGAGE was largely successful, targeted improvements are needed.
    • Addressing identified hurdles can enhance data sharing efficacy.
    • Strategies are outlined to overcome challenges in international data sharing for research consortia.