[Adults with congenital heart diseases: a growing population, a multidisciplinary approach]

C Blanche1, T Rutz, P Vogt

  • 1Service de cardiologie, HUG, 121 I Genève 14. coralie.blanche@hcuge.ch

Revue Medicale Suisse
|June 25, 2013
PubMed

Insights

Adults with congenital heart disease (ACHD) are an emerging patient group requiring specialized care. Dedicated ACHD centers are crucial for managing care, training specialists, and advancing research.

Area of Science:

  • Cardiology
  • Pediatric Medicine
  • Adult Congenital Heart Disease (ACHD)

Context:

  • Congenital heart disease (CHD) was historically viewed as a pediatric condition.
  • Improved pediatric survival rates have led to a growing population of adults with CHD.
  • This demographic shift necessitates specialized medical attention for adults with congenital heart disease (ACHD).

Purpose:

  • To highlight the evolving landscape of congenital heart disease management.
  • To emphasize the need for specialized care models for the ACHD population.
  • To introduce the role of dedicated ACHD centers in patient care and research.

Summary:

  • Adults with congenital heart disease (ACHD) are increasingly recognized as a distinct patient cohort.
  • The European Society of Cardiology (ESC) released guidelines in 2010 for ACHD management.
  • ACHD centers are established to provide comprehensive care, foster specialist training, and encourage collaborative research.

Impact:

  • Ensures continuity of care for adults with congenital heart disease.
  • Promotes the development of expertise in ACHD management.
  • Facilitates advancements in scientific understanding and treatment of ACHD through national collaboration.

Related Concept Videos

Cardiomyopathy V: Interprofessional Care01:29

Cardiomyopathy V: Interprofessional Care

Managing cardiomyopathy involves addressing underlying or precipitating causes, treating heart failure with medications, and implementing dietary changes and a balanced exercise and rest regimen.Lifestyle ModificationsCardiomyopathy patients should adopt a low-sodium diet to reduce fluid retention and manage heart failure. A personalized exercise and rest plan helps maintain physical fitness without overstraining the heart. Avoiding alcohol and tobacco is essential to prevent further damage to...
Cardiomyopathy III: Hypertrophic Cardiomyopathy01:29

Cardiomyopathy III: Hypertrophic Cardiomyopathy

Hypertrophic cardiomyopathy, or HCM, is an autosomal dominant genetic disorder characterized by asymmetric left ventricular hypertrophy without ventricular dilation. It is more common in men and is typically diagnosed in young, athletic adults.EtiologyHCM is primarily genetic and is caused by mutations in genes encoding sarcomeric proteins. Researchers have identified over 1400 mutations across at least 11 different genes. Among these, the most frequently occurring mutations are found in the...
Rheumatic Heart Disease III: Medical Management01:21

Rheumatic Heart Disease III: Medical Management

Rheumatic heart disease (RHD) management can be divided into two main strategies: prevention and long-term management.Primary PreventionPrimary prevention focuses on timely diagnosis and management of group A streptococcal pharyngitis to prevent acute rheumatic fever. The most widely used antibiotic for treating this condition is intramuscular benzathine penicillin G.Acute Rheumatic Fever TreatmentThe primary treatment goal for a patient diagnosed with acute rheumatic fever is to suppress the...
Rheumatic Heart Disease IV: Nursing Management01:20

Rheumatic Heart Disease IV: Nursing Management

AssessmentA comprehensive assessment is essential in managing a patient with rheumatic heart disease (RHD). Begin with obtaining a detailed medical history, including recent streptococcal infections, a history of rheumatic fever, or previously diagnosed rheumatic heart disease. Assess the patient for symptoms such as fever, chest pain, widespread joint pain (arthralgia), tachycardia, pericardial friction rub, muffled heart sounds, heart murmurs, peripheral edema, subcutaneous nodules, and...
Rheumatic Heart Disease I: Introduction01:23

Rheumatic Heart Disease I: Introduction

Rheumatic heart disease or RHD is a chronic condition that results from rheumatic fever, causing permanent damage to the heart valves.Etiology and Risk FactorsIt primarily arises from rheumatic fever, an inflammatory disease that can develop after untreated or inadequately treated group A streptococcal (GAS) pharyngitis. Streptococcus spreads through direct contact with oral or respiratory secretions. While the bacteria are the causative agents, factors like malnutrition, overcrowding, poor...
Coronary Artery Disease V: Interprofessional Care01:27

Coronary Artery Disease V: Interprofessional Care

Interprofessional care for coronary artery disease includes pharmacological therapy and revascularization procedures.Pharmacological therapy for Coronary Artery Disease (CAD) aims to manage symptoms, prevent complications, and improve patient outcomes through various classes of medications:Antiplatelet Agents:Aspirin and Clopidogrel: These medications inhibit platelet aggregation, preventing blood clots, which is crucial for avoiding heart attacks and strokes. Doctors often prescribe these...