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Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
19:15

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Published on: August 25, 2014

Maternal attitudes and knowledge about newborn screening.

Patricia Newcomb1, Barbara True, Judith Walsh

  • 1Texas Health Resources, Fort Worth, Texas, USA. patriciaNewcomb@texashealth

MCN. the American Journal of Maternal Child Nursing
|June 27, 2013
PubMed
Summary

Mothers lack understanding of newborn screening (NBS) and dried bloodspot (DBS) retention for research. Educational interventions are needed to improve parental consent for vital research utilizing DBS.

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Area of Science:

  • Medical Genetics
  • Public Health
  • Bioethics

Background:

  • Newborn screening (NBS) is a critical public health program.
  • Dried bloodspots (DBS) collected during NBS are valuable for research.
  • Understanding parental knowledge and attitudes is crucial for informed consent and research participation.

Purpose of the Study:

  • To assess mothers' understanding of NBS.
  • To evaluate maternal attitudes towards state retention of DBS for research.
  • To identify factors influencing parental consent for DBS research.

Main Methods:

  • A cross-sectional survey was conducted with 548 mothers of newborns in North Texas.
  • The Maternal Attitudes and Knowledge about Newborn Screening Survey was utilized.
  • Multiple regression analysis examined associations between responses and demographic variables.

Main Results:

  • Maternal knowledge regarding NBS and DBS retention was generally inadequate.
  • Postpartum nurses were the primary source of NBS information.
  • While generally supportive of research use, Medicaid recipients and minorities showed more reluctance regarding DBS sharing.

Conclusions:

  • Mothers require better education on NBS and the research use of infant bloodspots.
  • Potential opt-in policies in Texas could limit the availability of DBS for research.
  • Development of targeted, antenatal educational interventions is recommended to address parental concerns and facilitate research participation.