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Key issues of daily life in adults with congenital heart disease

Magalie Ladouceur1, Laurence Iserin, Sarah Cohen

  • 1Department of Paediatric Cardiology, Centre de Référence des Malformations Cardiaques Congénitales Complexes (M3C), Hôpital Necker-Enfants-Malades, Université Paris Descartes, Sorbonne Paris Cité, AP-HP, Paris, France. magalie.ladouceur@gmail.com

Archives of Cardiovascular Diseases
|June 29, 2013
PubMed

Insights

Adults with congenital heart disease (ACHD) face daily life challenges impacting their quality of life. Educational programs can address these issues, promoting healthy lifestyles and preventing complications for the growing ACHD population.

Area of Science:

  • Cardiology
  • Adult Congenital Heart Disease (ACHD) Management
  • Public Health

Background:

  • Increasing survival rates have led to a growing population of adults with operated congenital heart disease.
  • This population presents unique medical and daily life challenges for healthcare providers.
  • Adult congenital heart disease (ACHD) patients require specialized care beyond typical pediatric cardiology.

Purpose of the Study:

  • To review the daily life issues encountered by adults with congenital heart disease.
  • To discuss preventive measures for improving the quality of life in ACHD patients.
  • To highlight the importance of tailored educational programs for ACHD.

Main Methods:

  • Literature review of studies focusing on daily life aspects of ACHD.
  • Analysis of reported difficulties in sport, employment, insurability, and travel for ACHD patients.
  • Identification of preventive strategies and educational interventions.

Main Results:

  • ACHD patients report significant challenges in areas such as physical activity, career, insurance, and mobility.
  • Lifestyle modifications are crucial for preventing cardiovascular complications in ACHD.
  • Educational programs are identified as a key intervention for managing ACHD daily life issues.

Conclusions:

  • Addressing the daily life issues of ACHD is essential for enhancing their overall well-being.
  • Proactive management through education and lifestyle guidance can improve quality of life for ACHD.
  • Further development of specialized educational resources is recommended for the ACHD population.

Keywords:
ACHDAdult congenital heart diseaseCADCHDCardiopathie congénitale de l’adulteEducationLifestyleQuality of lifeQualité de vieReconnaissance Qualité Travailleur HandicapéStyle de vieTQTHVO(2)adult congenital heart diseasecongenital heart diseasecoronary artery diseaseoxygen uptake.Éducation

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