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Published on: January 7, 2020
[Individual neonatal end-of-life care and family-centred bereavement support]
L Garten1, K von der Hude, B Rösner
1Klinik für Neonatologie, Charité Universitätsmedizin Berlin. lars.garten@charite.de
Insights
This study introduces an interdisciplinary concept for neonatal end-of-life care and family-centered bereavement support. It addresses the need for standardized quality management and comprehensive care for dying newborns and their families.
Area of Science:
- Perinatal Medicine
- Palliative Care
Context:
- Neonatal end-of-life care and bereavement support present multiprofessional challenges.
- Healthcare providers often lack knowledge regarding standardized quality management and bereavement support components.
- There is a need for improved care strategies for dying newborns and their families.
Purpose:
- To present an interdisciplinary concept for individual neonatal end-of-life care and family-centered bereavement support.
- To meet the medical, psychological, emotional, and spiritual needs of dying newborns, parents, and families.
- To facilitate standardized preparation, evaluation, and reflection in end-of-life care.
Summary:
- An interdisciplinary concept was developed at the Center of Perinatal Medicine, Charité, Berlin.
- The concept focuses on individualized care for the dying neonate, parents, and family.
- It emphasizes standardized processes for preparing, evaluating, and reflecting on end-of-life care cases.
Impact:
- Provides recommendations for implementing a basic care concept for families with dying newborns.
- Aims to improve the quality of neonatal end-of-life care and bereavement support.
- Highlights the importance of multiprofessional collaboration in perinatal palliative care.
Abstract:
Neonatal end-of-life care and family-centred bereavement support in perinatal medicine are a multiprofessional challenge directed to the dying newborn and the parents as well as to the care-givers. Clinical experience shows that many aspects of individual neonatal end-of-life care and family-centred bereavement support are not well known to the health-care providers. This is especially true for a standardised quality management and the components of bereavement support offered to parents. An interdisciplinary concept for an individual neonatal end-of-life care and famlily-centred bereavement support has been developed at the Center of Perinatal Medicine at the Charité, Berlin. The concept aims for two main aspects: (1) meeting the individual medical, psychological, emotional and spiritual needs of the dying newborn, the parents and family, and (2) facilitating standardised and process-orientated preparation, evaluation and reflexion of every case of end-of-life care. In this article some recommendations for implementing a basic care concept for families and their dying newborns are presented.
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