[Individual neonatal end-of-life care and family-centred bereavement support]

L Garten1, K von der Hude, B Rösner

  • 1Klinik für Neonatologie, Charité Universitätsmedizin Berlin. lars.garten@charite.de

Insights

This study introduces an interdisciplinary concept for neonatal end-of-life care and family-centered bereavement support. It addresses the need for standardized quality management and comprehensive care for dying newborns and their families.

Area of Science:

  • Perinatal Medicine
  • Palliative Care

Context:

  • Neonatal end-of-life care and bereavement support present multiprofessional challenges.
  • Healthcare providers often lack knowledge regarding standardized quality management and bereavement support components.
  • There is a need for improved care strategies for dying newborns and their families.

Purpose:

  • To present an interdisciplinary concept for individual neonatal end-of-life care and family-centered bereavement support.
  • To meet the medical, psychological, emotional, and spiritual needs of dying newborns, parents, and families.
  • To facilitate standardized preparation, evaluation, and reflection in end-of-life care.

Summary:

  • An interdisciplinary concept was developed at the Center of Perinatal Medicine, Charité, Berlin.
  • The concept focuses on individualized care for the dying neonate, parents, and family.
  • It emphasizes standardized processes for preparing, evaluating, and reflecting on end-of-life care cases.

Impact:

  • Provides recommendations for implementing a basic care concept for families with dying newborns.
  • Aims to improve the quality of neonatal end-of-life care and bereavement support.
  • Highlights the importance of multiprofessional collaboration in perinatal palliative care.

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