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Satisfaction with palliative care after stroke: a prospective cohort study
Dylan Blacquiere1, Khadija Bhimji, Hilary Meggison
1Department of Medicine, University of Ottawa, Ontario, Canada. dblacquiere@toh.on.ca
Stroke
|July 4, 2013
Summary
Family satisfaction with palliative care after stroke was high overall. Key areas for improvement include emotional support, artificial feeding, hydration, and communication during end-of-life care.
Area of Science:
- Neurology
- Palliative Care
- Health Services Research
Background:
- Limited research exists on family satisfaction with palliative care for acute stroke patients.
- Understanding family perceptions is crucial for improving end-of-life care in stroke.
Purpose of the Study:
- To determine the satisfaction levels of families caring for acute stroke patients receiving palliative care.
- To identify specific domains of palliative care that influence family satisfaction after stroke.
Main Methods:
- A survey was conducted with families of patients who received palliative care after ischemic stroke, intracerebral hemorrhage, or subarachnoid hemorrhage.
- The After-Death Bereaved Family Member Interview was administered four weeks post-patient death to assess satisfaction.
Main Results:
- Fifteen families participated in the study.
- Overall family satisfaction was high (9.04/10).
- Highest satisfaction was noted in decision-making participation; lowest satisfaction was in emotional needs, artificial feeding, hydration, and communication.
Conclusions:
- Families receiving palliative care for stroke at this institution reported high overall satisfaction.
- Specific areas such as emotional support and communication require targeted improvements.
- Further research with larger patient populations is recommended to validate these findings.
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