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Community-based participatory research in complex settings: clean mind-dirty hands.
Jihad Makhoul1, Rima Nakkash2, Trudy Harpham3
1Department of Health Promotion and Community Health, Faculty of Health Sciences, American University of Beirut, Beirut, Lebanon.
Community-based participatory research in complex settings faces significant challenges. External social, economic, and structural factors profoundly impacted community member participation despite a dedicated coalition.
Area of Science:
- Community-based participatory research (CBPR)
- Public health research
- Social determinants of health
Background:
- Limited literature exists on participation challenges in complex research settings.
- Community-based research often overlooks contextual factors impacting engagement.
- Palestinian refugee camps in Lebanon face severe socio-economic and structural constraints.
Purpose of the Study:
- To describe an intervention promoting researcher-community partnership in a challenging context.
- To analyze factors affecting community member participation in all research stages.
- To highlight the influence of complex social conditions on research participation.
Main Methods:
- Community coalition established for all research phases (planning to dissemination).
- Intervention focused on balancing research rigor ('clean mind') with participatory principles ('dirty hand').
- Qualitative analysis of participation barriers within a Palestinian refugee camp in Beirut.
Main Results:
- Community member participation (youth, parents, teachers) was significantly hindered by contextual conditions.
- Social, physical, and structural factors beyond researchers' control interfered with participation.
- Maintaining rigorous research alongside deep community engagement proved challenging.
Conclusions:
- Contextual characteristics critically influence community-based research participation.
- External factors can compromise scientific rigor and community engagement.
- Researchers must proactively plan for participation, understanding and addressing contextual deterrents from the outset.
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