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14:32
Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
Published on: February 16, 2011
Narrative medicine: a call to pens.
Małgorzata J M Nowaczyk1, John C Carey
1Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada. nowaczyk@hhsc.ca
American Journal of Medical Genetics. Part A
|July 31, 2013
Summary
This article introduces narrative medicine in clinical genetics, inviting submissions for the Frameshifts column. It explores ethical considerations for sharing patient and doctor stories in genetic healthcare.
Area of Science:
- Medical Humanities
- Clinical Genetics
- Bioethics
Background:
- Introduces narrative medicine principles within the context of clinical genetics practice.
- Highlights the ethical considerations involved in publishing patient and physician narratives.
- Announces the establishment of a new journal column, "Frameshifts," dedicated to these stories.
Discussion:
- Explores the intersection of storytelling and genetic healthcare.
- Addresses the ethical landscape of sharing personal health experiences in a clinical setting.
- Emphasizes the value of patient and clinician perspectives in understanding genetic conditions.
Key Insights:
- Narrative medicine offers a valuable framework for understanding the human experience of genetic conditions.
- Ethical publication of patient/doctor stories requires careful consideration.
- The "Frameshifts" column aims to foster dialogue and shared understanding.
Outlook:
- Encourages submissions from clinicians and patients within the field of medical genetics.
- Aims to enrich the understanding of genetic conditions through personal narratives.
- Promotes a more empathetic and humanistic approach to clinical genetics.
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