Patients with rare diseases using pharmacists for medication information

Area of Science:

• Pharmacology
• Patient Care
• Health Communication

Background:

• Patients with rare diseases require reliable medication information.
• Understanding patient information-seeking behaviors is crucial for optimizing healthcare delivery.

Purpose of the Study:

• To compare patient use and perception of pharmacists versus physicians and the internet for medication information.
• To identify factors influencing pharmacist utilization for medication guidance in rare diseases.

Main Methods:

• A cross-sectional online survey was administered to 232 adult vasculitis patients.
• Data collected on medication information sources, perceived credibility, and information types sought.

Main Results:

• Physicians and the internet were consulted more frequently than pharmacists for medication information.
• Pharmacists were perceived as less credible than physicians and the internet.
• Community pharmacy use and female gender were associated with higher pharmacist consultation.

Conclusions:

• Vasculitis patients often bypass pharmacists for medication information, favoring physicians and the internet.
• Perceived pharmacist credibility and pharmacy setting significantly impact patient engagement.
• Qualitative research is recommended to explore patient-physician-pharmacist interactions and pharmacist credibility perceptions.