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Paediatric palliative care: a review of needs, obstacles and the future
Jackie Williams-Reade1, Angela L Lamson, Sharon M Knight
1School of Behavioral Health, Loma Linda University, Loma Linda, CA, USA.
Insights
Developing effective pediatric palliative care programs requires a framework addressing clinical, operational, and financial aspects. Nurse managers are key to navigating these complex factors for sustainable services.
Area of Science:
- Palliative Care
- Healthcare Management
- Nursing
Background:
- Paediatric palliative care presents complex challenges beyond clinical needs, encompassing operational policies and financial barriers.
- The continuum of services for patients requires integrated approaches to care delivery.
Purpose of the Study:
- To propose a framework, the 'three world view,' for evaluating paediatric palliative care programs.
- To provide nurse managers with an evaluative lens for program planning and assessment.
Main Methods:
- A literature review was conducted, analyzing 54 articles.
- The review focused on clinical, operational, and financial factors within paediatric palliative care.
Main Results:
- The 'three world view' framework integrates clinical best practices, operational/policy standards, and financial feasibility.
- Fifty-four articles were synthesized to represent the current literature on these factors.
Conclusions:
- Efficient paediatric palliative care services necessitate identifying and addressing clinical, operational, and financial resources and barriers.
- Nursing management is crucial for addressing the multifaceted needs and concerns in paediatric palliative care.
Aim:
This literature review offers a response to the current paediatric palliative care literature that will punctuate the need for a framework (i.e. the three world view) that can serve as an evaluative lens for nurse managers who are in the planning or evaluative stages of paediatric palliative care programmes.
Background:
The complexities in providing paediatric palliative care extend beyond clinical practices to operational policies and financial barriers that exist in the continuum of services for patients.
Evaluation:
This article offers a review of the literature and a framework in order to view best clinical practices, operational/policy standards and financial feasibility when considering the development and sustainability of paediatric palliative care programmes.
Key Aspects:
Fifty-four articles were selected as representative of the current state of the literature as it pertains to the three world view (i.e. clinical, operational and financial factors) involved in providing paediatric palliative care.
Conclusion:
In developing efficient paediatric palliative care services, clinical, operational and financial resources and barriers need to be identified and addressed.
Implications For Nursing Management:
Nursing management plays a crucial role in addressing the clinical, operational and financial needs and concerns that are grounded in paediatric palliative care literature.
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