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Paediatric palliative care: a review of needs, obstacles and the future

Jackie Williams-Reade1, Angela L Lamson, Sharon M Knight

  • 1School of Behavioral Health, Loma Linda University, Loma Linda, CA, USA.

Insights

Developing effective pediatric palliative care programs requires a framework addressing clinical, operational, and financial aspects. Nurse managers are key to navigating these complex factors for sustainable services.

Area of Science:

  • Palliative Care
  • Healthcare Management
  • Nursing

Background:

  • Paediatric palliative care presents complex challenges beyond clinical needs, encompassing operational policies and financial barriers.
  • The continuum of services for patients requires integrated approaches to care delivery.

Purpose of the Study:

  • To propose a framework, the 'three world view,' for evaluating paediatric palliative care programs.
  • To provide nurse managers with an evaluative lens for program planning and assessment.

Main Methods:

  • A literature review was conducted, analyzing 54 articles.
  • The review focused on clinical, operational, and financial factors within paediatric palliative care.

Main Results:

  • The 'three world view' framework integrates clinical best practices, operational/policy standards, and financial feasibility.
  • Fifty-four articles were synthesized to represent the current literature on these factors.

Conclusions:

  • Efficient paediatric palliative care services necessitate identifying and addressing clinical, operational, and financial resources and barriers.
  • Nursing management is crucial for addressing the multifaceted needs and concerns in paediatric palliative care.
Abstract

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