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Making program evaluation activities family-centered: a qualitative study.

Katherine A Moreau1, J Bradley Cousins

  • 1Department of Pediatrics, Faculty of Education, University of Ottawa , Ottawa, Ontario , Canada .

Disability and Rehabilitation
|August 22, 2013
PubMed
Summary
This summary is machine-generated.

Program evaluation in pediatric rehabilitation can better align with family-centered services (FCS) by involving diverse families in development and ensuring evaluations are relevant and respectful. This enhances care quality and family engagement.

Keywords:
Childrenfamily-centeredpediatricsprogram evaluation

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Area of Science:

  • Pediatric Rehabilitation
  • Program Evaluation
  • Family-Centered Care

Background:

  • Pediatric rehabilitation programs aim to improve outcomes for children with disabilities.
  • Family-centered service (FCS) philosophy emphasizes collaboration and respect for families.
  • Integrating FCS principles into program evaluation is crucial for relevance and effectiveness.

Purpose of the Study:

  • To explore methods for aligning program evaluation activities with family-centered service (FCS) philosophy in pediatric rehabilitation.
  • To identify practical strategies for enhancing family involvement in program evaluation processes.

Main Methods:

  • Qualitative study involving two Canadian pediatric rehabilitation centers.
  • Data collection through focus groups with program staff and interviews with parents.
  • Analysis of participant perspectives on family-centered program evaluation.

Main Results:

  • Seven key strategies were identified to enhance congruence between program evaluation and FCS.
  • Strategies include diverse family inclusion, facilitated family involvement, family champions, and family involvement in program development.
  • Relevance of evaluations to families, center-wide statements on family involvement, and family compensation were also highlighted.

Conclusions:

  • Aligning program evaluation with FCS philosophy is essential for improving usefulness and relevance in pediatric rehabilitation.
  • Evaluation approaches must respect the diverse needs, characteristics, and cultures of families.
  • Implementing these strategies can enhance the quality of care, evaluation practices, and overall FCS.