Community engagement with genetics: public perceptions and expectations about genetics research

Area of Science:

• Genomic Medicine
• Public Health Genomics

Background:

• Genomic medicine offers significant health improvement opportunities.
• Public understanding and acceptance are critical for successful genomic medicine implementation.

Purpose of the Study:

• To explore public attitudes and expectations regarding genomics research.
• To understand public knowledge gaps and concerns about genetic research.

Main Methods:

• Community consultations were conducted with 33 members of the general public.
• An online survey was completed by 1024 Atlantic Canadians.

Main Results:

• Participants expressed hope for genomics research to improve health for present and future generations.
• A significant portion of participants lacked knowledge about genetics and research, actively seeking information.
• Public reception was not uncritical, with complex issues and questions emerging from consultations and surveys.

Conclusions:

• Public support is essential for realizing health advancements from genomics research and biobanks.
• Transparent, regular dialogue between researchers and the public can foster understanding and inform the design of genetic health services.