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Evaluating the role of Cardiac Genetics Nurses in inherited cardiac conditions services using a Maturity Matrix

Maggie Kirk1, Amy Simpson2, Mark Llewellyn2

  • 1University of South Wales, Pontypridd, UK maggie.kirk@southwales.ac.uk.

European Journal of Cardiovascular Nursing
|September 10, 2013
PubMed

Insights

Cardiac Genetics Nurses (CGNs) improved inherited cardiac condition (ICC) services in the UK. A Maturity Matrix framework showed significant progress in care pathways and clinic efficiency, enhancing patient care.

Area of Science:

  • Cardiovascular genetics
  • Healthcare service improvement
  • Clinical genetics

Background:

  • Cardiovascular disease is a major global health concern, with genetic factors contributing significantly to its prevalence.
  • Existing UK healthcare services struggle to meet the demands of individuals with inherited cardiac conditions (ICCs).
  • The British Heart Foundation funded Cardiac Genetics Nurse (CGN) positions to bolster ICC services, with CGNs coordinating care across cardiac and genetics specialisms.

Purpose of the Study:

  • To develop and implement a framework for evaluating improvements in ICC services after the introduction of CGNs.
  • To establish a benchmark for assessing the evolution of ICC services over time.

Main Methods:

  • A consensus-driven approach was used to create a performance grid (Maturity Matrix, MM) with five domains and stages of ICC service development.
  • CGNs utilized the MM for self-assessments from 2009 to 2011, using a six-point scale to track progress.
  • Progress was visualized using spider diagrams to represent service development from 'emerging' to 'established' stages.

Main Results:

  • Significant advancements were observed across all service domains, particularly in the utilization of care pathways and clinic operational efficiency.
  • The study highlighted a strong commitment to family-centered care within the developing ICC services.
  • Progress was evident in services at all stages of development, from new to established.

Conclusions:

  • The Inherited Cardiac Conditions Maturity Matrix (ICC-MM) offers a robust framework for assessing and guiding the development of ICC services.
  • Cardiac Genetics Nurses play a crucial role in integrating specialized care, fostering the creation of effective and sustainable ICC services.
  • The framework and CGN role are beneficial for ICC services at all developmental stages.
Abstract

Keywords:
Cardiac geneticsICC servicesconsensus techniquesinherited cardiac conditions servicesmaturity matrixnurses

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