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Systematic Hearing Performance Evaluation Process for Adolescents with Cochlear Implantation at Early Ages
Published on: March 24, 2023
Barriers to early pediatric cochlear implantation
Michael Armstrong1, Alison Maresh, Claire Buxton
1Division of Pediatric Otolaryngology, Children's National Medical Center, Washington, DC, United States.
Insights
Many children with congenital sensorineural hearing loss (SNHL) face delayed cochlear implant (CI) surgery. Public insurance and parental factors significantly contribute to these delays, impacting outcomes.
Area of Science:
- Pediatrics
- Audiology
- Otolaryngology
Background:
- Universal newborn hearing screening identifies congenital sensorineural hearing loss (SNHL).
- Early cochlear implant (CI) intervention by 12 months improves outcomes for SNHL.
- Many children receive CIs after the recommended age.
Purpose of the Study:
- Identify pre-lingual SNHL patients at risk for delayed CI implantation.
- Analyze barriers contributing to delayed CI implantation.
Main Methods:
- Retrospective chart review of CI recipients (2008-2012).
- Analysis of patient demographics, diagnosis age, implantation age, and SNHL etiology.
- Team member surveys to identify implantation barriers.
Main Results:
- 42 pre-lingual SNHL patients received CIs; 52% were implanted >12 months post-diagnosis.
- Public insurance linked to later SNHL diagnosis and longer CI delay.
- Parental factors (missed appointments, reluctance) were primary delay causes.
Conclusions:
- Significant delays in CI implantation for pre-lingual SNHL patients occur.
- Insurance status and parental barriers impede timely CI intervention.
- Systemic support and family education are crucial to overcome implantation delays.
Objectives:
Universal newborn hearing screening has significantly improved the ability to identify patients with congenital sensorineural hearing loss (SNHL), which results in earlier treatment and better hearing and development outcomes. It is recommended that patients born with SNHL who meet criteria receive cochlear implants (CIs) by a target age of 12 months, however many children are being implanted at an older age. This study aims to describe populations of pre-lingual patients with SNHL that are at risk for delayed implantation and to identify and analyze barriers that cause this delay.
Methods:
Charts of patients receiving a CI between January 2008 and June 2012 at a tertiary care cochlear implant center were reviewed retrospectively. We looked at patient demographics, age at hearing loss diagnosis, age at implantation, and etiology of hearing loss. Barriers to implantation were identified through surveys completed by team members.
Results:
Fifty-seven CI recipients were identified of which 42 were in patients with pre-lingual SNHL. SNHL etiology included: cochlear dysplasia (18%), GJB2/GJB6 (17%), acquired (10%) extreme prematurity (9%), and idiopathic (46%). The median age of SNHL diagnosis for pre-lingual patients was 15 months. Compared to private insurance, public insurance status was associated with SNHL diagnosis at a significantly later median age (20.0 vs. 4.0 months, p=0.024), and with a significantly longer median interval from diagnosis to implantation (25.5 vs. 11.0 months, p=0.029). While cochlear implant team members identified delayed insurance approval and medical comorbidities as reasons for delayed implantation, the most significant factor identified was parental, with delayed/missed appointments or reluctance for evaluations or surgery.
Conclusion:
52% of patients with pre-lingual SNHL that met criteria for CI were implanted more than 12 months after diagnosis. Having public or no insurance was significantly associated with delayed implantation. Parental barriers were most common factors cited for delays in implantation. Overcoming these delays necessitates appropriate identification of at risk patients and creating a system to educate families and chaperone them through the process.
