Chronic disease influences over 40 major life-changing decisions (MLCDs): a qualitative study in dermatology and

Z U Bhatti1, A Y Finlay, C E Bolton

  • 1Centre for Socioeconomic Research, Cardiff School of Pharmacy and Pharmaceutical Sciences, Cardiff University, Cardiff, UK; Department of Dermatology and Wound Healing, School of Medicine, Cardiff University, Cardiff, UK.

Insights

Chronic diseases significantly impact major life-changing decisions (MLCDs), affecting career, relationships, and lifestyle choices. Understanding these impacts is crucial for effective patient management and support.

Area of Science:

  • Medical Sociology
  • Patient-Reported Outcomes
  • Chronic Disease Management

Background:

  • Chronic diseases profoundly affect patients' psychosocial well-being and major life-changing decisions (MLCDs).
  • Limited understanding exists regarding the specific MLCDs influenced by chronic illness and their long-term consequences.

Purpose of the Study:

  • To identify major life-changing decisions (MLCDs) influenced by chronic disease.
  • To establish a clear definition for 'MLCDs' in the context of chronic illness.
  • To propose support strategies for patients navigating MLCDs.

Main Methods:

  • Qualitative analysis of individual interviews with dermatology patients and postal surveys from other medical specialties.
  • Thematic categorization through an iterative coding-recoding process using NVivo8 software.
  • Data from 308 evaluable responses were analyzed to conceptualize MLCDs.

Main Results:

  • Chronic diseases influenced a wide spectrum of MLCDs, including career choice, employment, relationships, education, and lifestyle habits.
  • Reported MLCDs varied between dermatology patients and other medical specialties, with younger individuals reporting more affected MLCDs.
  • Forty-one themes were categorized into 18 MLCD categories, leading to a developed definition and suggested support strategies.

Conclusions:

  • Chronic diseases exert a significant influence across a broad range of major life-changing decisions.
  • MLCDs represent a novel and important dimension in assessing the overall burden of chronic disease.
  • Enhanced clinician awareness of MLCDs is essential for comprehensive patient care and management.
Abstract

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