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Hypoplastic left heart syndrome: a review and the report of two cases
Heart & Lung : the Journal of Critical Care
|January 1, 1986
Insights
Caring for infants with Hypoplastic Left Heart Syndrome (HLHS) presents significant challenges for nurses. Ethical, legal, and financial issues, alongside monitoring infant perfusion and parental coping, require careful consideration.
Area of Science:
- Pediatric Cardiology
- Neonatal Nursing
- Bioethics
Background:
- Hypoplastic Left Heart Syndrome (HLHS) is a complex congenital heart defect requiring intensive care.
- Care for infants with HLHS and their families involves multifaceted challenges.
- Historical social policies have introduced ethical and economic considerations in infant care.
Abstract:
Caring for infants with HLHS and their parents is challenging. Social policies of the 1980s such as "Baby Doe," "Baby Fae," and diagnosis-related groups raise additional ethical and economic or financial questions. The nurse must diligently monitor tissue perfusion in the infant and the parents' coping with loss, while struggling with difficult ethical/legal issues.