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Parents and children with cerebral palsy discuss communication needs in hospital

Bronwyn Hemsley1, Melissa Kuek, Kaely Bastock

  • 1Faculty of Education and the Arts, School of Humanities and Social Science, The University of Newcastle , Callaghan, Newcastle , Australia.

Developmental Neurorehabilitation
|November 16, 2013
PubMed

Insights

Children with cerebral palsy (CP) and complex communication needs (CCN) require direct communication with hospital staff. Barriers include limited access to augmentative and alternative communication (AAC) and staff time.

Area of Science:

  • Pediatric Rehabilitation
  • Communication Sciences
  • Disability Studies

Background:

  • Children with cerebral palsy (CP) often have complex communication needs (CCN).
  • Hospital environments present unique communication challenges for these children and their families.
  • Understanding these challenges is crucial for effective care.

Purpose of the Study:

  • To investigate the communication needs and experiences of children with CP and CCN in a hospital setting.
  • To identify barriers and facilitators to effective communication.
  • To inform strategies for improving communication support.

Main Methods:

  • Qualitative study utilizing focus groups with 10 parents.
  • Interviews were conducted with seven children diagnosed with CP and CCN.
  • Content analysis was performed on the collected data to identify themes.

Main Results:

  • Children desire direct communication with hospital staff for various needs, including attention, basic needs, information exchange, and environmental control.
  • Key communication barriers identified include inadequate access to augmentative and alternative communication (AAC) systems, staff preference for communicating with parents, and time constraints.
  • Children's desire for autonomy and participation in their care was evident.

Conclusions:

  • Effective communication strategies are essential for children with CP and CCN in hospitals.
  • Parents play a vital role in supporting their child's communication.
  • The provision and accessibility of AAC systems are critical for empowering these children.
  • Policy and practice changes are needed to better prepare children with CP and CCN for hospital communication.
Abstract

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