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'Going between worlds': Travelling with children with complex needs.

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Mothers caring for children with complex needs face significant travel challenges. Coordinated service planning could reduce unnecessary journeys, easing the burden of caregiving during travel.

Keywords:
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Area of Science:

  • Phenomenology
  • Maternal Health
  • Pediatric Care

Background:

  • Caring for children with complex needs presents unique challenges for mothers.
  • Travel and mobility are integral aspects of caregiving for these families.
  • Understanding mothers' lived experiences of caregiving during travel is crucial.

Purpose of the Study:

  • To explore the experiences of mothers providing care for children with complex needs, particularly during travel.
  • To identify the challenges and facilitators associated with caregiving during journeys.

Main Methods:

  • Hermeneutic phenomenological approach.
  • Data collected through multiple interviews (n=48) and diary records (n=11) from 17 mothers in Ireland.
  • Analysis focused on understanding the essence of mothers' lived experiences.

Main Results:

  • Caregiving during travel is a complex, challenging, and demanding aspect of daily life for mothers.
  • All journeys require extensive preparation and proactive care strategies.
  • Mothers undertake few unnecessary journeys, highlighting the essential nature of travel for care.

Conclusions:

  • Caregiving for children with complex needs involves navigating a 'going-between world' of travel.
  • Careful preparation and preemptive care are essential for managing travel-related caregiving demands.
  • Improved, coordinated service planning could significantly reduce unnecessary travel, thereby alleviating caregiver burden.