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Setup and Execution of the Rapid Cycle Deliberate Practice Death Notification Curriculum
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[Trusted person and living will: information and implementation defect].

G Guyon1, L Garbacz1, A Baumann2

  • 1EA 7299, Ethos, faculté de médecine, université de Lorraine, 9, avenue de la Forêt-de-Haye, BP 184, 54500 Vandœuvre-lès-Nancy, France; Service de médecine légale et droit de la santé, faculté de médecine, 54000 Nancy, France.

La Revue De Medecine Interne
|November 30, 2013
PubMed
Summary

French citizens are largely unaware of legal options for healthcare decision-making, such as appointing a trusted person or drafting advance directives. Public information campaigns are needed to improve knowledge of these crucial patient rights.

Keywords:
Directives anticipéesDroit des patientsEnd of life careFin de vieHealth care proxyLiving willPatient rightsPersonne de confiance

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Area of Science:

  • Medical Law
  • Bioethics
  • Public Health

Context:

  • French law permits adults to designate a healthcare proxy and create advance directives.
  • These legal instruments allow individuals to express their wishes when incapacitated.
  • Knowledge and opinions on these patient rights were assessed.

Purpose:

  • To evaluate public awareness and opinions regarding advance directives and trusted persons in healthcare decision-making.
  • To identify gaps in public understanding of legal patient rights in France.

Summary:

  • A survey of 367 individuals in Nancy revealed that while awareness of appointing a trusted person was relatively high (75%), knowledge of advance directives was low (majority ignorant).
  • Respondents favored the trusted person's opinion, especially if based on prior patient instructions, and expressed willingness to document treatment preferences and organ donation wishes in advance directives.
  • Most participants desired this information to be stored on their health card chip.

Impact:

  • Findings highlight a significant gap in public knowledge of legal patient rights concerning end-of-life care and healthcare decision-making.
  • The study underscores the need for public information campaigns to promote understanding and utilization of advance directives and trusted persons.
  • Results provide a basis for policy recommendations following the 2012 Sicard report on end-of-life care in France.