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Symptom recognition to diagnosis of autism in Nepal

Merina Shrestha1, Rena Shrestha

  • 1Department of Child Health, Tribhuvan University Teaching Hospital, Maharajgunj, Kathmandu, Nepal, drmerinashrestha@gmail.com.

Journal of Autism and Developmental Disorders
|December 3, 2013
PubMed

Insights

Autism awareness is critically low in Nepal, leading to significant delays in diagnosis and early intervention for children. Many children are diagnosed late, missing crucial developmental windows.

Area of Science:

  • Pediatric Neurology
  • Developmental Pediatrics
  • Global Child Health

Background:

  • Limited awareness and knowledge regarding autism spectrum disorder (ASD) in Nepal.
  • Children diagnosed with autism often miss the critical window for early intervention services.

Purpose of the Study:

  • To investigate the age of help-seeking and diagnosis for autism in Nepal.
  • To identify delays in the diagnostic process for children with autism in Nepal.

Main Methods:

  • Retrospective analysis of medical records for children diagnosed with autism.
  • Data collection on age at help-seeking, reasons for seeking help, and age at diagnosis.

Main Results:

  • Mean age for seeking medical help was 27.9 months, primarily for delayed language.
  • Mean age of autism diagnosis was 55.6 months.
  • Significant diagnostic delay of 29.4 months from help-seeking to diagnosis, with a maximum lag of 13 years.

Conclusions:

  • Profound lack of awareness about autism in Nepal contributes to delayed diagnosis.
  • Delays in symptom recognition, healthcare seeking, and physician awareness contribute to late autism diagnosis.
  • Urgent need for improved public awareness and healthcare provider education on autism in Nepal to facilitate early intervention.

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