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Related Experiment Video

Updated: May 5, 2026

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An intervention to decrease stigma in young adults with sickle cell disease.

Coretta M Jenerette1, Cheryl A Brewer, Lloyd J Edwards

  • 11The University of North Carolina at Chapel Hill, NC, USA.

Western Journal of Nursing Research
|December 7, 2013
PubMed
Summary
This summary is machine-generated.

Young adults with sickle cell disease (SCD) experienced increased awareness of stigma after a care-seeking intervention (CSI). This pilot study suggests communication skills training may reduce health-related stigma in SCD patients.

Keywords:
care-seekingcommunicationsickle cellstigma

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Area of Science:

  • Medical interventions
  • Patient-centered care
  • Health psychology

Background:

  • Young adults with sickle cell disease (SCD) face significant health-related stigma when seeking pain management.
  • This stigma can negatively impact their healthcare experiences and outcomes.
  • There is a need for interventions to address and mitigate this stigma.

Purpose of the Study:

  • To pilot a care-seeking intervention (CSI) designed to decrease health-related stigma in young adults with SCD.
  • To evaluate the effectiveness of the CSI compared to an attention control group.

Main Methods:

  • A pilot randomized controlled trial involving 90 young adults (ages 18-35) with SCD.
  • Participants were assigned to either the CSI group or an attention control group (life review interviews).
  • Longitudinal data analyses assessed changes in perceived total stigma and stigma by doctors.

Main Results:

  • The CSI group showed a significant increase in awareness of perceived total health-related stigma compared to the control group.
  • Participants in the CSI group also reported increased awareness of stigma from doctors.
  • These findings indicate the intervention's potential impact on patient perception.

Conclusions:

  • The pilot care-seeking intervention (CSI) shows promise in increasing young adults with SCD's awareness of health-related stigma.
  • Communication skills training appears to play a crucial role in addressing stigma experienced by this population.
  • Further research is warranted to refine and validate this intervention for broader application.