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Chinese Hemophilia Joint Health Score 2.1 reliability study.

J Sun¹, P E Hilliard, B M Feldman

¹Hematology Department, Nanfang Hospital, Southern Medical University, Guangzhou, China.

Haemophilia : the Official Journal of the World Federation of Hemophilia

|December 17, 2013

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Chinese physiotherapists and physiatrists demonstrated excellent reliability in administering the Hemophilia Joint Health Score (HJHS) after basic training. This tool effectively assesses musculoskeletal health in boys with haemophilia.

Area of Science:

Musculoskeletal Health
Paediatric Rheumatology
Haemophilia Management

Background:

Growing demand for musculoskeletal (MSK) specialists in China's haemophilia care.
Need for standardized tools to assess MSK health in young patients.
Previous lack of trained personnel for specialized haemophilia care.

Purpose of the Study:

To evaluate the inter- and intra-rater reliability of the Hemophilia Joint Health Score (HJHS) version 2.1.
To assess the usability of HJHS version 2.1 among Chinese physiotherapists (PTs) and physiatrists with limited haemophilia experience.
To validate the translated HJHS version 2.1 in a Chinese context.

Main Methods:

A 4-day Train the Trainer workshop was conducted for Chinese PTs and physiatrists.

Keywords:

haemophilia musculoskeletal reliability

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Participants were trained to administer the HJHS version 2.1 to boys aged 4-17 with haemophilia.

Examinations were repeated by the same raters on consecutive days to assess intra-rater reliability; different raters examined the same patients for inter-rater reliability.

Main Results:

Excellent inter-rater reliability (ICC 0.90) and intra-rater reliability (ICC 0.91) were achieved.
Excellent internal consistency of the HJHS items was confirmed (Cronbach's alpha = 0.86).
The HJHS version 2.1 was reliably administered by Chinese healthcare professionals with basic training and limited prior haemophilia experience.

Conclusions:

The HJHS version 2.1 is a reliable tool for assessing the musculoskeletal health of boys with haemophilia in China.
Basic training enables Chinese PTs and physiatrists to effectively utilize the HJHS version 2.1.
This study supports the widespread adoption of HJHS version 2.1 for improving haemophilia care in China.