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Couples with dementia: Positioning the 'we'.

Lars-Christer Hydén1, Elin Nilsson2

  • 1Center for Dementia Research (CEDER), Department of Medicine and Health Studies, Linköping University, Linköping, Sweden lars-christer.hyden@liu.se.

Dementia (London, England)
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Summary

Spouses in dementia couples use "we" less, impacting their shared identity. Maintaining a collective "we" is crucial for couples navigating dementia progression and relationship dynamics.

Keywords:
couplecouplehooddementiapositioningpronounwe-ness

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Area of Science:

  • Linguistics
  • Psychology
  • Gerontology

Background:

  • Dementia significantly impacts relational dynamics and communication within couples.
  • Understanding how couples maintain a shared identity is crucial for supporting them through the disease progression.

Purpose of the Study:

  • To investigate how spouses in dementia couples position themselves using pronoun analysis, particularly 'we'.
  • To explore the linguistic markers of couple identity and individual positioning in the context of dementia.

Main Methods:

  • Joint interviews were conducted with 11 couples where at least one spouse had dementia.
  • Quantitative analysis of pronoun usage, focusing on the frequency of 'we'.
  • Qualitative analysis of the contextual use of 'we' to understand relational positioning.

Main Results:

  • All spouses used the pronoun 'we', but spouses with dementia used it less frequently than their healthy counterparts.
  • Qualitative analysis revealed 'we' usage reflects a dual positioning: as a couple and as individuals within the couple.
  • The frequency of 'we' usage is challenged by the progression of dementia.

Conclusions:

  • Pronoun analysis, specifically 'we', offers insights into how couples with dementia negotiate their shared identity.
  • Maintaining a collective 'we' is a significant challenge for couples facing dementia.
  • The study highlights the complex and emotionally charged relational dynamics shaped by dementia.