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Hope in caring for the deeply forgetful: enduring selfhood and being open to surprises
1Professor at Stony Brook University School of Medicine, Department of Preventive Medicine and Director, Center for Medical Humanities, Compassionate Care and Bioethics.
Abstract:
Hope in the context of individuals with dementia and their carers is defined in this paper in terms of an openness to surprises with regard to indicators of continuing self-identity in the individual with dementia, active agency with regard to carers and affected individuals to the extent possible, and the affirmation of a theory of personhood and related moral status that breaks through the limits and prejudices of hypercognitive values.
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