[Time and use of discussion forums in type 1 diabetes: contribution to patient education]

The purpose of this study was to elucidate the concept of temporality in discussions on forums used by individuals concerned by type 1 diabetes: adults and parents of children. The contents of messages were first converted into skills, and their temporality was then analysed, particularly in terms of the duration of active threads.

Two types of temporality are involved in the use of forums: prescribed time governed by the therapeutic requirements related to a chronic disease and the decisions to be taken, and open-ended social time available on the Internet and the resulting reflexive processes.

Our results show that topics relating to self-care and adaptation skills are often discussed and new threads on the topic are frequently introduced. Considerable diversity in the activity level associated with the various threads was observed, as most threads were only active for short periods.

Following this study, our research perspectives concern: (i) the ways in which patients and their families reconcile the temporality dictated by a chronic disease (prescribed time) with the open-ended social time available on the Internet; and (ii) the ways in which this temporality is characteristic of patient learning processes via discussion forums. Future research will focus on the concept of rythmo-apprenance (rhythmic learning) in therapeutic patient education.