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Published on: July 4, 2018
Continuous palliative sedation: not only a response to physical suffering.
Siebe J Swart1, Agnes van der Heide, Lia van Zuylen
11 Department of Public Health, Erasmus Medical Centre , Rotterdam, the Netherlands .
Healthcare professionals consider physical, psychological, and existential suffering when deciding on continuous palliative sedation (CPS). Patient and family preferences, along with life expectancy, are weighed against refractory symptoms.
Area of Science:
- Palliative Care
- Medical Ethics
- Symptom Management
Background:
- Palliative sedation is used to manage intractable symptoms in end-of-life care.
- Decision-making processes for palliative sedation are not well-documented.
Purpose of the Study:
- To explore considerations for initiating continuous palliative sedation (CPS).
- To identify factors influencing decisions regarding CPS.
Main Methods:
- Qualitative interviews with healthcare professionals (physicians, nurses).
- Study conducted in general practice, nursing homes, and hospitals.
- Constant comparative method used for analysis.
Main Results:
- Refractory states arise from combined physical, psychological, and existential suffering.
- Limited life expectancy is a key consideration, though debated.
- Patient preferences (dignity, suffering) and family issues influence decisions.
Conclusions:
- CPS indications stem from unbearable refractory symptoms, encompassing physical and nonphysical distress.
- Decisions involve balancing patient/family preferences and life expectancy against symptom severity.
- CPS is a response to multifaceted suffering in the dying phase, not just physical symptoms.
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