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[Validity and reliability of the spanish EQ-5D-Y proxy version]
N Gusi1, M A Perez-Sousa1, M Gozalo-Delgado1
1Facultad de Ciencias del Deporte, Universidad de Extremadura, Cáceres, España.
The EQ-5D-Y proxy version shows good reliability and validity for assessing health-related quality of life in children and adolescents, based on parent reports. This tool is a valuable addition for pediatric HRQoL research.
Area of Science:
- Pediatric Health Outcomes
- Health-Related Quality of Life (HRQoL) Measurement
- Psychometrics
Background:
- A proxy version of the EQ-5D-Y, a Health-Related Quality of Life (HRQoL) questionnaire for children and adolescents, has been developed.
- No existing data validates or assesses the reliability of this proxy tool.
Purpose of the Study:
- To analyze the validity and reliability of the EQ-5D-Y proxy version.
- To evaluate the agreement between self-reported and proxy-reported HRQoL measures.
Main Methods:
- Administered Spanish EQ-5D-Y and proxy versions to children, adolescents, and their parents.
- Assessed test-retest reliability and convergent validity with other HRQoL measures.
- Examined known-groups validity and agreement between self-report and proxy responses.
Main Results:
- High test-retest agreement (over 88%) for both self-report and proxy versions.
- Convergent validity comparable to the international EQ-5D-Y.
- Agreement between self-report and proxy versions ranged from 72.9% to 97.1%.
Conclusions:
- The EQ-5D-Y proxy version demonstrates preliminary evidence of reliability and validity.
- The findings support the use of the EQ-5D-Y proxy version for assessing pediatric HRQoL.
- This tool offers a viable method for collecting HRQoL data when direct patient reporting is not feasible.
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