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Improving transition from paediatric to adult cystic fibrosis care: programme implementation and evaluation

Megumi J Okumura1, Thida Ong, Diana Dawson

  • 1Division of General Pediatrics, University of California, , San Francisco, California, USA.

BMJ Quality & Safety
|January 14, 2014
PubMed

Insights

A new quality improvement program successfully transitioned pediatric cystic fibrosis (CF) patients to adult care, enhancing communication and readiness. This initiative improved patient self-advocacy and reduced hospital transfers, optimizing CF care transitions.

Area of Science:

  • Medical Sciences
  • Healthcare Quality Improvement
  • Patient Transition Care

Background:

  • Effective therapies are extending the lives of cystic fibrosis (CF) patients into adulthood.
  • High-quality care during the transition from pediatric to adult CF centers is crucial for survival.
  • This transfer process presents significant challenges for patients and healthcare providers.

Purpose of the Study:

  • To develop, implement, and evaluate a theory-based program for transitioning pediatric CF patients to adult care.
  • To create a standardized curriculum, care standards, and patient transfer protocols.
  • To assess the impact of the transition program on patient readiness and healthcare processes.

Main Methods:

  • A multi-phase quality improvement project involving collaboration between pediatric and adult CF teams.
  • Development of a transition curriculum and standardized transfer protocols.
  • Evaluation using staff surveys, meeting notes, transfer tracking, and the Transition Readiness Assessment Questionnaire (TRAQ).

Main Results:

  • Sustained collaboration through quarterly meetings over 4 years.
  • A significant increase in transition discussions with families (35% to 73%, p<0.001).
  • A trend towards improved patient self-advocacy scores on the TRAQ and decreased in-hospital transfers.

Conclusions:

  • A successful curriculum and process for transitioning pediatric to adult CF care were established.
  • The collaboration enhanced communication among CF care teams and facilitated feedback loops.
  • Future evaluation is needed to determine the long-term impact on patient morbidity.
Abstract

Keywords:
Patient EducationQuality ImprovementTransitions in Care

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