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Coping in adult patients with severe haemophilia

M Binnema1, L H Schrijvers, R Bos

  • 1Van Creveldkliniek, Department of Haematology, University Medical Center Utrecht, Utrecht, The Netherlands.

Haemophilia : the Official Journal of the World Federation of Hemophilia
|January 25, 2014
PubMed

Insights

Adults with severe haemophilia primarily use task-oriented coping strategies, similar to the general population. However, they utilize less emotion-oriented and avoidance coping, with emotion-oriented coping linked to poorer psychological health and social participation.

Area of Science:

  • Medical Psychology
  • Hematology
  • Quality of Life Research

Background:

  • Coping strategies are crucial for managing stress associated with chronic diseases like severe haemophilia.
  • Understanding coping mechanisms in haemophilia patients can inform supportive care interventions.
  • Severe haemophilia presents unique challenges impacting patients' daily lives and psychological well-being.

Purpose of the Study:

  • To investigate coping behaviors in adult patients with severe haemophilia.
  • To identify determinants influencing coping strategy selection in this population.
  • To compare coping patterns of haemophilia patients with a healthy control group.

Main Methods:

  • Assessed coping using the Coping Inventory for Stressful Situations (CISS-21), measuring task-oriented, emotion-oriented, and avoidance coping.
  • Compared patient scores to a control group of 374 Dutch working men.
  • Measured determinants including activities (Haemophilia Activities List), participation (Impact on Participation and Autonomy Questionnaire), and health status (D-AIMS2).

Main Results:

  • Patients with severe haemophilia used task-oriented coping similarly to controls (P=0.13).
  • Significantly less emotion-oriented (57% vs. 25%, P<0.05) and avoidance coping were observed in haemophilia patients (P<0.05).
  • Emotion-oriented coping strongly correlated with socio-psychological health (r=0.67) and weakly with participation (r=0.32) and social interaction (r=0.29).

Conclusions:

  • Adults with severe haemophilia predominantly employ task-oriented coping, comparable to the general population.
  • Reduced use of emotion-oriented and avoidance coping strategies was noted in haemophilia patients.
  • Poorer psychological health, reduced social interaction, and limited participation correlate with increased emotion-oriented coping use.

Keywords:
chronicdeterminantshaemophiliaprophylaxispsychological

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