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"It was an overwhelming thing": parents' needs after infant diagnosis with congenital adrenal hyperplasia

Kyla L Boyse1, Melissa Gardner2, Donna J Marvicsin1

  • 1School of Nursing, University of Michigan, Ann Arbor, MI.

Journal of Pediatric Nursing
|February 5, 2014
PubMed

Keywords:
Children with special health care needsChronic conditionsCongenital adrenal hyperplasiaDecision supportDisorders of sex developmentEndocrinologyHealth literacyInfantsInterviewMedical homeNewborn screeningParentsQualitativeRetrospectiveSocial support

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