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Importance of adherence in the outcome of juvenile idiopathic arthritis
Claudio A Len1, Vanessa B Miotto e Silva, Maria Teresa R A Terreri
1Pediatric Rheumatology Unit, Allergy, Immunology and Rheumatology Division, Department of Pediatrics, Escola Paulista de Medicina, Universidade Federal de São Paulo (EPM-UNIFESP), São Paulo, Brazil, claudiolen@gmail.com.
Insights
Adherence to treatment is crucial for juvenile idiopathic arthritis (JIA) outcomes. Addressing factors affecting adherence, like delayed treatment and poor patient education, can improve prognosis for children with JIA.
Area of Science:
- Pediatric Rheumatology
- Clinical Practice
- Patient Adherence
Background:
- Juvenile idiopathic arthritis (JIA) treatment has advanced, improving patient prognosis.
- However, modifiable factors like delayed referrals and poor adherence can negatively impact outcomes.
- Adherence remains a significant challenge in managing JIA.
Purpose of the Study:
- To review key aspects of treatment adherence in JIA.
- To identify factors affecting adherence and their impact on prognosis.
- To discuss assessment and strategies for promoting adherence in JIA patients.
Main Methods:
- Literature review of adherence to treatment in JIA.
- Discussion of factors influencing adherence.
- Analysis of the impact of poor adherence on JIA prognosis.
- Exploration of assessment and intervention strategies.
Main Results:
- Delayed referrals, drug treatment initiation, and poor adherence compromise JIA outcomes.
- Information-reinforcement education is highlighted as a key strategy.
- Assessing and addressing adherence barriers are critical for health professionals.
Conclusions:
- Improving adherence to treatment is essential for optimizing juvenile idiopathic arthritis prognosis.
- Multifaceted strategies, including enhanced patient education, are needed.
- Addressing adherence challenges requires a concerted effort from healthcare providers.
Abstract:
Medical treatment of juvenile idiopathic arthritis (JIA) has advanced in the last decade, and improved prognosis is a reality in daily clinical practice. Despite this improvement in the quality of treatment, the outcome can still be compromised by modifiable factors, including delayed referral to a specialist, delayed drug treatment, poor adherence to treatment, and early interruption of drug treatment. In this review we discuss the most relevant aspects related to adherence to treatment in JIA, with emphasis on: factors that affect adherence to treatment; effect of poor adherence to treatment on JIA prognosis; when to suspect and how to assess poor adherence to treatment; and strategies to promote adherence to treatment, with an emphasis on information-reinforcement education. Besides presenting the findings of other authors, we also try to report our experience of this subject, which is still a challenge for health professionals.
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