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The nursing management of asthma is a comprehensive approach that relies heavily on the expertise and dedication of healthcare professionals. It involves thorough assessment, accurate diagnosis, strategic planning, effective implementation, and diligent evaluation. By meticulously following this step-by-step process, healthcare professionals play a crucial role in providing the best possible care and treatment for patients with asthma, enhancing their overall health and well-being.
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Asthma is a chronic inflammatory disorder of the airways characterized by variable airflow obstruction and heightened bronchial responsiveness to a wide range of triggers. The underlying inflammation leads to airway swelling, mucus hypersecretion, and smooth muscle constriction, all of which narrow the airway lumen and impede airflow. Clinically, asthma presents with recurrent episodes of wheezing, shortness of breath, chest tightness, and coughing, symptoms that typically vary in intensity and...
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Bronchial Thermoplasty: A Novel Therapeutic Approach to Severe Asthma
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A shared e-decision support portal for pediatric asthma.

Alexander G Fiks1, Stephanie Mayne, Dean J Karavite

  • 1Pediatric Research Consortium (PeRC) (Drs Fiks and Grundmeier), Center for Biomedical Informatics (Drs Fiks and Grundmeier and Mr Karavite), PolicyLab (Dr Fiks and Mss Mayne and DeBartolo), and The Center for Pediatric Clinical Effectiveness (Dr Fiks and Mss Mayne and DeBartolo), The Children's Hospital of Philadelphia, Philadelphia, Pennsylvania; and Department of Pediatrics, Perelman School of Medicine, University of Pennsylvania, Philadelphia (Drs Fiks and Grundmeier).

The Journal of Ambulatory Care Management
|March 6, 2014
PubMed
Summary
This summary is machine-generated.

A new electronic portal, MyAsthma, was developed to improve shared decision-making for pediatric asthma care. This patient-centered tool enhances communication and safety between families and clinical teams.

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Area of Science:

  • Pediatric Pulmonology
  • Health Informatics
  • Patient Engagement

Background:

  • Shared decision-making is crucial in managing chronic pediatric conditions like asthma.
  • Existing healthcare systems often lack robust tools to support ongoing communication and shared goal setting between patients and providers.

Purpose of the Study:

  • To describe the user-centered development of "MyAsthma," an electronic medical record-based portal.
  • To facilitate shared decision-making in pediatric asthma management.
  • To identify key features for improving patient-provider communication and safety.

Main Methods:

  • User-centered design approach involving interviews and focus groups with parents and clinical team members.
  • Iterative usability testing to refine system features.
  • Development of an electronic medical record-based portal.

Main Results:

  • Identified overarching requirements for sustained communication and patient safety.
  • Prioritized features include tracking concerns, goals, symptoms, side effects, and medication adherence, alongside decision support and educational materials.
  • Iterative testing refined the portal's usability.

Conclusions:

  • "MyAsthma" effectively supports shared decision-making in pediatric asthma care.
  • The portal model can be applied to other ambulatory care settings to enhance patient-provider collaboration.
  • Technology can foster improved communication and patient safety in chronic disease management.