Validation of parental reports of asthma trajectory, burden, and risk by using the pediatric asthma control and

Sande O Okelo1, Michelle N Eakin2, Kristin A Riekert2

  • 1Department of Pediatrics, David Geffen School of Medicine at UCLA, Los Angeles, Calif.

Insights

The Pediatric Asthma Control and Communication Instrument (PACCI) effectively measures parent-reported asthma morbidity, including direction, bother, and risk, demonstrating good validity for assessing pediatric asthma outcomes.

Area of Science:

  • Pediatric Pulmonology
  • Clinical Assessment Tools
  • Patient-Reported Outcomes

Background:

  • Limited pediatric asthma questionnaires address multiple morbidity dimensions as per national guidelines.
  • Few tools utilize patient-reported outcomes for assessing pediatric asthma.

Purpose of the Study:

  • To evaluate the Pediatric Asthma Control and Communication Instrument (PACCI) for measuring parent-reported asthma morbidity.
  • Assess the PACCI's ability to capture direction, bother, and risk dimensions of pediatric asthma.

Main Methods:

  • Administered the PACCI to children during routine asthma care.
  • Assessed asthma control, quality of life (PACQLQ), and lung function (FEV1%).
  • Evaluated the PACCI for discriminative validity.

Main Results:

  • 317 children participated; mean age 8.2 years.
  • Worsening PACCI Direction and increased Bother correlated with poorer asthma control and quality of life.
  • PACCI Risk events were associated with poorer asthma control and quality of life.

Conclusions:

  • PACCI Direction, Bother, and Risk are valid measures of parent-reported outcomes.
  • The PACCI demonstrates good discriminative validity.
  • PACCI is a simple tool for assessing pediatric asthma morbidity, risk, and control.
Abstract

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