Perinatal palliative care: a developing specialty

Rut Kiman1, Lara Doumic2

  • 1Head, Pediatric Palliative Care Team, Hospital Nacional ‘Profesor Alejandro Posadas’, Buenos Aires, Argentina; Lecturer, Department of Pediatrics, University of Buenos Aires; and Latin America representative, International Children’s Palliative Care Netwo.

Insights

Perinatal palliative care improves quality of life for infants with life-limiting conditions and their families. More research is needed to understand its impact on these vulnerable patients and their families.

Area of Science:

  • Neonatal medicine
  • Paediatric palliative care
  • Bioethics

Background:

  • Neonates and babies face the highest mortality rates within the paediatric population.
  • Perinatal palliative care is crucial for enhancing the quality of life for infants with life-limiting conditions and their families.
  • Limited data exists on the comprehensive impact of perinatal palliative care.

Purpose of the Study:

  • To provide an overview of perinatal palliative care, including its development.
  • To examine challenges in end-of-life decision-making for neonates with poor prognoses.
  • To explore issues within the field using national, institutional, and patient case studies.

Main Methods:

  • Literature review and overview of perinatal palliative care.
  • Analysis of national and institutional case studies.
  • Examination of patient case studies related to end-of-life care.

Main Results:

  • Perinatal palliative care aims to improve quality of life for infants and families.
  • End-of-life decision-making for neonates with adverse prognoses presents ethical challenges.
  • Case studies highlight various aspects of perinatal palliative care implementation and challenges.

Conclusions:

  • Further investigation into perinatal palliative care is essential due to limited available data.
  • Addressing ethical considerations in end-of-life care for neonates is critical.
  • Understanding the journey of babies with life-limiting conditions and their families requires more research.

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