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Published on: January 7, 2020
Perinatal palliative care: a developing specialty
1Head, Pediatric Palliative Care Team, Hospital Nacional Profesor Alejandro Posadas, Buenos Aires, Argentina; Lecturer, Department of Pediatrics, University of Buenos Aires; and Latin America representative, International Childrens Palliative Care Netwo.
Insights
Perinatal palliative care improves quality of life for infants with life-limiting conditions and their families. More research is needed to understand its impact on these vulnerable patients and their families.
Area of Science:
- Neonatal medicine
- Paediatric palliative care
- Bioethics
Background:
- Neonates and babies face the highest mortality rates within the paediatric population.
- Perinatal palliative care is crucial for enhancing the quality of life for infants with life-limiting conditions and their families.
- Limited data exists on the comprehensive impact of perinatal palliative care.
Purpose of the Study:
- To provide an overview of perinatal palliative care, including its development.
- To examine challenges in end-of-life decision-making for neonates with poor prognoses.
- To explore issues within the field using national, institutional, and patient case studies.
Main Methods:
- Literature review and overview of perinatal palliative care.
- Analysis of national and institutional case studies.
- Examination of patient case studies related to end-of-life care.
Main Results:
- Perinatal palliative care aims to improve quality of life for infants and families.
- End-of-life decision-making for neonates with adverse prognoses presents ethical challenges.
- Case studies highlight various aspects of perinatal palliative care implementation and challenges.
Conclusions:
- Further investigation into perinatal palliative care is essential due to limited available data.
- Addressing ethical considerations in end-of-life care for neonates is critical.
- Understanding the journey of babies with life-limiting conditions and their families requires more research.
Abstract:
Neonates and babies have the highest death rate in the paediatric population. Perinatal palliative care aims to enhance the quality of life of babies with a life-limiting condition and their families. However, very little data is available on perinatal palliative care and its impact on babies and families along their journey. End-of-life decision-making for babies with an adverse prognosis also remains ethically challenging. This paper provides an overview of perinatal palliative care and its development, and then considers some of the issues affecting this field by looking at single national, institutional, and patient case studies.
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