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Native Hawaiian views on biobanking.

Maile Tauali i1, Elise Leimomi Davis, Kathryn L Braun

  • 1University of Hawai`i, 1960 East-west Road, Honolulu, HI, 96822, USA, mtaualii@hawaii.edu.

Journal of Cancer Education : the Official Journal of the American Association for Cancer Education
|April 1, 2014
PubMed
Summary
This summary is machine-generated.

Native Hawaiians desire community governance, transparency, and re-consent for biospecimen research. These principles ensure genomic research priorities align with Native Hawaiian health needs and community values.

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Area of Science:

  • Genomic science
  • Biobanking
  • Indigenous health research

Background:

  • Genomic science offers personalized healthcare advancements.
  • Biospecimen research is crucial for expanding genomic capacity.
  • Indigenous populations are key targets for genomic research due to unique genotypes.

Purpose of the Study:

  • To explore Native Hawaiian perceptions and expectations regarding biobanking.
  • To inform ethical and culturally appropriate biobanking practices with indigenous communities.

Main Methods:

  • Ten discussion groups were conducted with 92 Native Hawaiians.
  • Participants received a presentation on biobanking prior to discussions.

Main Results:

  • Six key themes emerged: community governance, research transparency, prioritizing Native Hawaiian health, community-accountable leadership, re-consent for specimen use, and community education.
  • These themes form the basis of "G.R.E.A.T. Research" principles (Governance, Re-consent, Education, Accountability, Transparency, Research priorities).

Conclusions:

  • Biobanking protocols for Native Hawaiians must incorporate community-driven governance and ethical considerations.
  • The "G.R.E.A.T. Research" framework provides a model for ethical indigenous biobanking globally.
  • Findings will guide biobanking facilities in Hawaii and inform international indigenous genomic research initiatives.