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A guide on how to develop an International Classification of Functioning, Disability and Health Core Set.

M Selb1, R Escorpizo, N Kostanjsek

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This paper outlines the standard scientific process for developing International Classification of Functioning, Disability and Health (ICF) Core Sets. This standardized ICF Core Set development ensures consistent application for various health conditions and purposes.

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Area of Science:

  • Rehabilitation Medicine
  • Health Services Research
  • Disability Studies

Background:

  • International Classification of Functioning, Disability and Health (ICF) Core Sets are essential for standardizing the description of functioning and disability.
  • Existing ICF Core Sets cover numerous health conditions, but new ones are needed for other conditions and purposes.

Purpose of the Study:

  • To describe the standard scientific process for developing new ICF Core Sets.
  • To provide a guide for future ICF Core Set development projects.

Main Methods:

  • A three-phase, multi-method scientific process is employed.
  • Includes four preparatory studies: multicentre study, systematic literature review, qualitative study, and expert survey.
  • Culminates in an international conference for structured decision-making and consensus.

Main Results:

  • The preparatory studies provide the foundation for expert consensus on ICF categories.
  • Comprehensive and Brief ICF Core Sets are decided upon at the international conference.
  • The developed ICF Core Sets may require modifications for specific applications.

Conclusions:

  • The described process offers a standardized approach to developing new ICF Core Sets.
  • This methodology facilitates the creation of ICF Core Sets for diverse health conditions and specific purposes.
  • Ensures consistent and reliable application of ICF Core Sets in various settings.