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Understanding primary carers' occupational adaptation and engagement
Carmel McDougall1, Angus Buchanan, Sunila Peterson
1School of Occupational Therapy and Social Work, Curtin Health Innovation Research Institute, Curtin University, Perth, Western Australia, Australia.
Australian Occupational Therapy Journal
|April 3, 2014
Summary
Caring for individuals with intellectual disability in rural areas significantly impacts primary carers' occupational engagement, often limiting or altering their daily activities and roles. Support services are crucial for enhancing carers' well-being and participation.
Area of Science:
- Occupational Science
- Disability Studies
- Rural Health
Background:
- Primary carers of individuals with intellectual disability in remote rural settings face intensive, 24/7 care demands.
- These demands restrict access to formal support, respite care, and personal occupations.
Purpose of the Study:
- To explore the impact of caregiving for a person with intellectual disability in a rural farming location on primary carers' occupational engagement.
Main Methods:
- The study employed a qualitative approach using interpretive phenomenological analysis.
- Data were collected through seven in-depth, semi-structured interviews with primary carers.
Main Results:
- Primary carers experienced significant occupational adaptation and engagement changes, including limited opportunities, development of new occupations, adaptation of existing ones, and cessation of others.
- Key influencing factors identified were lifestyle, occupational roles, health and wellness, quality of support, community context, and future outlook.
Conclusions:
- Caregiving profoundly affects primary carers' occupational adaptation and engagement.
- A family-centered clinical approach is suggested as an effective intervention for supporting these carers.
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