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Adherence to transition guidelines in European paediatric nephrology units
Thomas A Forbes1, Alan R Watson, Aleksandra Zurowska
1Nottingham Children's Hospital, Children's Renal and Urology Unit, QMC Campus, Derby Road, Nottingham, NG7 2UH, UK.
Pediatric Nephrology (Berlin, Germany)
|April 9, 2014
Summary
Pediatric nephrology units show suboptimal awareness of transition guidelines. Transition planning often starts too late, hindering self-care and effective patient transfer to adult care.
Area of Science:
- Nephrology
- Pediatric Healthcare
- Patient Transition
Background:
- Growing concerns regarding the transfer of young adults from pediatric to adult renal units.
- The 2011 International Pediatric Nephrology Association/International Society of Nephrology (IPNA/ISN) Consensus Statement aimed to address these transition challenges.
Purpose of the Study:
- To survey transition practices in European pediatric nephrology units.
- To evaluate the integration and impact of the 2011 IPNA/ISN Consensus Statement on transition.
Main Methods:
- A survey was conducted across 15 pediatric nephrology units in Europe.
- Data collected focused on transition practices two years post-consensus statement publication.
Main Results:
- Awareness of the consensus statement was suboptimal, with only one-third of units integrating it into practice.
- Transition planning often began late (after age 15), with barriers including patient/parent attachment and self-care difficulties.
- Age-based transfer policies were common, potentially diverting focus from competency development.
Conclusions:
- The consensus statement has had some impact, but awareness and integration remain insufficient.
- Late initiation of transition and age-based policies hinder effective patient transfer and self-care.
- Economic and resource limitations may affect the use of transition clinics and support services.
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