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Patients' sense of security during palliative care-what are the influencing factors?
Anna Milberg1, Maria Friedrichsen2, Maria Jakobsson3
1Department of Social and Welfare Studies, Linköping University, Linköping, Sweden; Palliative Education and Research Centre in the County of Östergötland, Norrköping, Sweden; Department of Advanced Home Care, LAH Öst, County of Östergötland, Norrköping, Sweden.
Context:
Having a sense of security is vitally important to patients who have a limited life expectancy.
Objectives:
We sought to identify the factors associated with patients' sense of security during the palliative care period.
Methods:
We recruited 174 adult patients (65% of those eligible) from six palliative home care units. The relationship between the patients' sense of security during palliative care and individual factors was evaluated in a stepwise procedure using the generalized linear model (ordinal multinomial distribution and logit link).
Results:
Respondents' ratings of their sense of security ranged from 1 (never) to 6 (always), with a mean value of 4.6 (SD 1.19). Patients with lower feelings of security experienced higher stress; more worry about personal finances; lower feelings of self-efficacy; a lower sense of security with the palliative care provided (lower ratings on subscales of care interaction); mastery; prevailed own identity; higher symptom intensity (especially depression, anxiety, and lack of well-being); lower health-related quality of life; lower attachment anxiety and avoidance; less support from family, relatives, and friends; lower comfort for those closest to them; and more often had gynecological cancer. Six variables (mastery, nervousness and stress, gynecological cancer, self-efficacy, worrying about personal finances, and avoidance) were selected in building the stepwise model.
Conclusion:
These findings stress the importance of palliative care services in supporting dying patients' sense of security through symptom management with a wide scope and through supporting the patients' sense of mastery, identity, and perception of a secure care interaction and also through attention to the family members' situation.
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