Living with hepatitis C: a phenomenological study.

Area of Science:

• Hepatology
• Qualitative Research
• Phenomenology

Background:

• Hepatitis C virus (HCV) infection is a global health concern with a high prevalence of chronic liver disease.
• Treatment for hepatitis C is not universally successful, leading to a growing population living with the virus long-term.
• Understanding the lived experiences of individuals with hepatitis C is critical for developing effective patient-centered care.

Purpose of the Study:

• To explore the lived experiences of adults diagnosed with hepatitis C over time.
• To identify key themes and challenges faced by individuals managing hepatitis C.
• To inform clinical practice and support strategies for hepatitis C patients.

Main Methods:

• A qualitative descriptive phenomenological study was employed.
• Unstructured interviews were conducted with 23 individuals positive for hepatitis C in the East of England.
• Participants were interviewed twice within a one-year period to capture longitudinal experiences.

Main Results:

• Six major themes emerged: the impact of hepatitis C on self-identity, interpersonal relationships, and self-management of the condition and its treatment.
• Participants described challenges in handling treatment issues and living with the long-term consequences of hepatitis C.
• The analysis highlighted concerns regarding future well-being and the ongoing impact of the virus.

Conclusions:

• Hepatitis C diagnosis can significantly disrupt an individual's sense of self and initiate a life transition.
• Living with hepatitis C is characterized by sustained uncertainty due to various complex factors.
• Implementing chronic care frameworks with consistent nursing support can improve patient experiences and facilitate adaptation to life with hepatitis C.