Experiences of surgical continence management approaches for cloacal anomalies: a qualitative analysis based on 6
Study Objective:
The aim of this qualitative study was to gain insight into health care experiences of young women diagnosed with cloacal anomalies, with a special focus on continence management.
Design:
Qualitative analysis of one-to-one interviews.
Setting:
A tertiary center for congenital anomalies of the urogenital tract in London.
Participants:
Six women aged 16 to 24 with cloacal anomalies.
Interventions:
Tape-recorded one-to-one semi-stuctured interviews with a skilled interviewer.
Main Outcome Measure(S):
The taped interviews were transcribed and analyzed verbatim using interpretative phenomenological analysis according to the research question. Organizing themes across all of the accounts were identified.
Results:
Two organizing themes concerning our research interests are summarized. The first theme Personal Agency in the Hands of Experts focuses on the interviewees' appreciation of their life-saving surgical care and their involvement in treatment decisions. The second theme Compromises and Trade-Offs focuses on what it was like to live with the more traditional versus the more advanced continence methods. Reliability emerged as a key priority in terms of continence treatment outcome. Gratitude may have interfered with the women's honest communications during treatment decision and evaluation consultations.
Conclusions:
A more developed approach to communication about the complex interventions proposed, founded on a nuanced understanding of users perspectives, can enhance informed decision making about continence management approaches. Despite these specific gaps, the interviewees were appreciative of their care and optimistic about life.
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